Our survivorship research takes place across all Fred Hutch divisions, through the Survivorship Clinic located within Seattle Cancer Care Alliance’s Wellness Center and through our Long-Term Follow-Up Program for blood stem-cell transplant patients. As part of these efforts, patients who obtain survivorship care through SCCA are asked to complete an annual questionnaire about their physical, emotional and medical experiences.
Many cancer survivors experience decreased quality of life due to physical problems brought on by their cancer treatment as well as emotional issues such as anxiety, depression and fear of recurrence. Researchers in the Public Health Sciences Division, the Biobehavioral Sciences program within the Clinical Research Division, and other groups at Fred Hutch and SCCA study factors associated with cancer survival and the effects of cancer and cancer treatment on quality of life. Study topics include physiological issues such as lymphedema, a condition that can present years after treatment; sexual dysfunction and body image issues; stress that can endure long after diagnosis, treatment and follow-up; and culturally appropriate methods of providing psychosocial support.
Fred Hutch teams are conducting research on long-term health outcomes for cancer survivors and ways to improve follow-up care. For example, the Fred Hutch Survivorship Program is leading a nationwide study that aims to improve long-term health outcomes for cancer survivors aged 18 to 39. The study, which involves six other comprehensive cancer centers, tests the effectiveness of using treatment summaries and survivorship care plans and collects evidence to support long-term follow-up recommendations.
After treatment, many cancer survivors transition back to their primary care physician, who may not understand the potential long-term or late-onset effects of the treatment or how to manage them. Researchers at Fred Hutch have helped to develop national guidelines for caring for survivors of various cancers, including head and neck and breast cancer.
Fred Hutch has two Long-Term Follow-Up programs focused on improving survivorship. Our Bone Marrow and Stem Cell Long-Term Follow-Up program provides lifelong consultation services to recipients of a bone marrow or stem cell transplant. Cellular Immunotherapy Long-Term Follow-Up provides monitoring and care for patients. Both programs partner with patients’ personal doctors and other healthcare providers to resolve medical problems that may develop after treatment.
The Survivorship Program conducts research focused on the long- and short-term physical, psychological, social and economic effects of cancer and its treatment. It offers a Survivorship Clinic, located within the Seattle Cancer Care Alliance Wellness Center, for cancer survivors. The program also hosts community events for cancer survivors and caregiver and suggests coping measures to help survivors deal with everything from “chemo brain” to stress management.
Numerous Fred Hutch investigators are researching a common and potentially deadly complication of bone marrow transplant known as graft-vs.-host disease, in which donor cells mount an immune response against the recipient’s healthy tissues. The condition can be acute or chronic, affecting the skin, mouth, eyes, joints, lungs, liver and other organs. Our research ranges from preventive strategies to clinical trials and targeted therapies.