The goal of this project is to examine ways to improve the health of long-term survivors of bone marrow or blood stem cell transplant. After transplant many survivors may feel stressed or may be unsure of what health care they need as a transplant survivor. We want to know if an online program called ‘INSPIRE,’ along with a personalized survivorship care plan and optional phone calls to discuss using the survivorship care plan, can improve stress and health care for transplant survivors.
This study will compare the INSPIRE program to the standard care of currently available online sites for transplant survivors to learn which works better for people who have received bone marrow or blood stem cell transplants. There are two groups of patients in this study. We will give different treatments to different groups, and compare the results to determine if the online program is effective. Participants will receive personalized medical guidelines to share with a health care provider to guide future treatment.
This project's goal is to use an internet- and social media-based program called INSPIRE to reduce depression and transplant-related emotional distress, and to improve health care adherence among adult hematopoietic cell transplantation (HCT) survivors.
The project builds on our previous work showing that an internet intervention is effective at reducing depression and distress for survivors at a single transplant center. By improving upon our earlier websites, adding texting and social media components like Facebook and Twitter, and extending the intervention to survivors from national transplant centers, we are advancing the science of providing online health care delivery to cancer survivors. Our new research integrates a stepped care, telehealth program with online technology to extend the impact of our treatments.
The goal of this project is to expand the INSPIRE project into a stepped care program with self-management calls. It includes online modalities using internet, social media and mobile apps to improve health care of survivors 2-5 years after HCT. We build on previous INSPIRE projects by focusing on cardiometabolic or subsequent cancer surveillance and distress. This project also extends to a large multicenter national program for sustainable dissemination and implementation testing, collaborating with the Center for International Blood and Marrow Transplant Research (CIBMTR) and the National Marrow Donor Program (NMDP). If effective, this program could be implemented nationwide for long-term HCT survivors and would provide a framework for similar survivorship care models in non-HCT cancer survivor populations.