Study to Refine an Intervention for Adolescents After Undergoing Hematopoietic Cell Transplant
Returning to school after a prolonged absence during their treatment can be challenging for students who have undergone bone marrow or blood stem cell transplantation. The purpose of this study is to evaluate educational modules that might be helpful for students returning to in-person school and their caregivers.
Specifically, we have created modules which include details on various potential challenges faced by patients at the time of returning to school and how your healthcare and school teams can be helpful during this process. These modules also contain direct quotes about the experiences of prior patients who have returned to in-person school after undergoing bone marrow or blood stem cell transplantation at Fred Hutchinson Cancer Center. Additionally, we provide information on parents’ rights under various acts such as the Americans with Disabilities Act and Individuals with Disabilities Education Act.
Did you or your child receive a blood or bone marrow transplant*?
If so, you may be eligible to participate in a new study being conducted by transplant doctors in the Survivorship Program at Fred Hutch. We want to learn about how we can improve the return to school process for patients undergoing bone marrow or blood stem cell transplant. We hope to use the information we gather to refine resources and interventions to make the transition back to school easier for students, families, healthcare providers and school personnel.
The study doesn’t require any in-person visits and we want to enroll childhood transplant survivors as well as parents or caregivers.
*Transplant using donor bone marrow, peripheral blood stem cells or cord blood
Eligibility Criteria
Caregivers may be eligible for the study if they:
- Are 18 years of age and older
- Participate in the patient’s care at least 50% of the time
- Are able to read and write English
- Have access to a computer, internet connection and email
- Have been sent a letter or email from their transplant center with a code
Transplant survivors may be eligible if they:
- Received bone marrow or blood stem cell transplantation at Seattle Children’s between age 10 and 17
- Have not returned to in-person school after transplant
- Intend to return to in-person school after transplant
- Are able to read and write English
- Have access to a computer, internet connection and email
- Have been sent a letter or email from their transplant center with a code
Participation Benefits:
Help us learn how to improve the process of returning to school after transplant
What will participants have to do?
All participants will complete one meeting via video conference. The meeting will take 30 to 60 minutes to complete and will include demonstrations of the educational modules we have created.
Interested? Click one of the options below to get started:
Contact the Study Team
Fred Hutch Cancer Center
Survivorship Program
Lauren Clarke, Study Coordinator
Neel Bhatt, MBBS, MPH
Dr. Bhatt is a pediatric hematologist-oncologist. He is an expert in cancer survivorship and cares for adult long-term survivors of pediatric cancer and blood or marrow transplantation.