Blood and Marrow Transplantation LTFU
COVID-19 (Coronavirus)
We understand that our BMT survivors may feel anxious about COVID-19. We are taking measures to make our clinic visits safe through additional screening and COVID-19 testing. We are following all guidance about personal protective equipment and additional cleaning and are confident that our actions are making a visit to the clinic safe for patients and staff. There are new practices in place that you will be asked to follow if you have an appointment.
If you have questions regarding how the current COVID-19 risk level impacts your LTFU upcoming or later appointment, call our LTFU Department (206) 667-4415 to discuss them with your care team.
Join our BMT LTFU Obliteride team this summer! 100% of participant-raised dollars go to work at Fred Hutch, advancing cancer prevention, detection, treatment, and cures. This year you can designate your fundraising to the area of work most meaningful to you (hint, hint – LTFU!).
On Saturday, August 12th we’ll walk/run for 3 miles from UW to Gas Works or cycle various routes. Or, join us by riding/walking/running from where ever you are if you can’t join us in Seattle.
Registration and fundraising varies by the activity you chose to participate in. Discounted registration and fundraising commitments available for youth/young adult participants and people who have or have had cancer.
Friends and family are welcome to join the team, too! To participate in the 25-, 50-, and 100-mile rides, you must be 18 or older. All ages are encouraged to participate in the 5K, but minors must be accompanied by a parent or legal guardian.
It’s easy to join our team, just click this link: http://engage.fredhutch.org/goto/BMTLTFUObliteride
Long-Term Follow-Up
Fred Hutch's Long-Term Follow-Up (LTFU) program provides life-long monitoring and care for patients following a bone-marrow or stem-cell transplant. Our services are provided through the Fred Hutch.
Fred Hutch physicians and researchers work in partnership with a patient's personal doctor to resolve medical problems and gather information for research. This information is used to develop improved strategies for preventing and treating the long-term effects of transplantation, and to educate patients about post-transplant problems.
Information for Physicians
We offer guidelines for doctors with patients who’ve received a hematopoietic stem cell transplant from Fred Hutch.
Information for Patients
Patients can find resources for general long-term care and dietary guidelines related to cancer diagnoses and post-transplant care.
Long-Term Follow-Up FAQ
We understand post-transplant patients and their families are braving new territory. Our frequently asked questions section features queries we hear most, updated as patient inquiries change.
LTFU Telemedicine Services
The LTFU Telemedicine team serves patients for life. Patients can call about routine post-transplant care or complications.
- The LTFU Telemedicine team can be reached at 206.667.4415
- The service accepts calls from the patient or their service providers, Monday – Friday, 8:30 a.m. – 4 p.m. PST.
- Patients can leave a voicemail message outside of business hours and may also email us or send us a fax at 800.376.8197.
Calls go through a brief intake process with a Patient Care Coordinator. They are returned by an LTFU Telemedicine RN after they have reviewed the patient’s transplant history and any recent clinical activity. Most calls are returned within 48 business hours, with priority being placed on more urgent matters. The RNs often request medical records (clinic notes, labs, current medication list, radiology reports and images, etc.), medical photographs and/or a completed GVHD Assessment and Scoring Form from the caller. Providing these items in a timely fashion will decrease the turnaround time. For inquiries requiring physician involvement, the RN will present the case during LTFU Telemedicine rounds on Tuesdays, Thursdays and Fridays. The LTFU attending physician will review available data and make recommendations.
Please note that the LTFU serves over 6,000 patients and we receive hundreds of pages of medical records from patients each day. You must call, email or fax your inquiry with the medical records for it to be reviewed by a clinician. Medical records that arrive without an accompanying phone, email or faxed inquiry are filed in the patient’s LTFU chart without a clinician review.
2022 BMT Reunion
We welcomed more than 300 guests to share, learn and celebrate BMT survivors. We also honored Dr. Mary Flowers for her more than 30 years as director of the Long-Term Follow-Up clinical program.
As you have experienced, patients come to Fred Hutch seeking hope and we are committed to delivering personalized care with warmth and compassion in a world-class institution. Our work never stops, and that’s why we rely on generous support from our community. Please consider making a gift with someone in your circle who is passionate about ending cancer.
Workshops from the reunion event are available to view online.
If you have any questions about the Fred Hutchinson Cancer Center LTFU program, contact the LTFU team.
Outpatient Long-Term Follow-Up Clinic
We see patients at both routine intervals and as needed for post-transplant complications. Patients receiving allogeneic (donor) transplants are asked to return to the clinic one year after their transplant for special testing to review their progress and plan future care. For some types of problems, local patients and those willing to travel may return for specialized care, such as treatment for chronic graft-versus-host disease (GVHD).
Local doctors and advanced practice providers can call 206.667.4415 to discuss referring a patient for in-patient care at the LTFU clinic. Our team works with specialty providers for comprehensive, post-transplant outpatient care, and multiple appointments may be scheduled to meet the patient’s needs.
Research Services
After returning to their primary care provider, patients can join the LTFU Research Program for as long as they’re willing to participate. Patients (and their doctors) are asked to complete an annual questionnaire on their transplant anniversary.
Collecting data from patients and their doctors, even decades after treatment, allows Fred Hutch researchers to learn about the long-term effects of transplantation and can help determine the best course of care for current and future patients. To ensure our research is complete, it’s important that patients without post-transplant problems also participate in this program.
“Most people think that because you are cured of your disease/disorder you are back to completely normal. They have no concept about the toll that it takes on your body!”
— Allogeneic transplant patient, 2008
Contact Long-Term Follow-up
Mailing Address:
Long-Term Follow-Up Program
Fred Hutchinson Cancer Center
Mail Stop LF-240
PO Box 19024
Seattle, WA 98109-1024