Marrow Failure Conference
Myelodysplastic syndrome or myeloproliferative neoplasm present many overlapping aspects and they can be difficult to distinguish from one another, while treatment options are different. Dr. Bart L. Scott discusses the importance of a correct diagnosis.
Although hematopoietic cell transplant – also called bone marrow or stem cell transplant – is the only potentially curative approach to MDS, non-transplant therapies can relieve symptoms, improve quality of life, and in some cases extend life. Dr. David Steensma covers some of the available options.
In this presentation, Dr. Bart L. Scott reviews the mechanism of stem cell transplantation, the indications for transplantation in MDS and the toxicities of this intervention.
The therapy of myeloproliferative neoplasms continues to evolve at a rapid pace. Dr. Ruben Mesa discusses current developments.
In this session, Dr. H. Joachim Deeg outlines transplantation treatments for myelofibrosis and how outcomes may differ, and new treatment developments.
Dr. David Margolis talks about Severe Aplastic Anemia and empowering patients and their family to ask the right questions when discussing treatment options with their health care team. He reviews current treatment options, including transplant and non-transplant options.
Paroxysmal Nocturnal Hemoglobinuria (PNH) is a rare acquired blood disorder. Dr. Bart L. Scott reviews the available treatments for PNH and the underlying pathology of this rare medical problem.
Leukemic transformation is the term used to describe the evolution of myelodysplasia (MDS) or a myeloproliferative neoplasm (MPN) into acute myeloid leukemia (AML). Once leukemic transformation occurs, the pace of disease rapidly accelerates and alternative therapies are required. Dr. Frederick R. Appelbaum gives an overview.
Living well with a blood disorder includes many issues, including physical activity, nutrition, and dealing with side effects of medication. Dr. Ruben Mesa goes over evolving information from clinical trials regarding nonpharmacologic interventions and covers evolving data regarding alternative approaches.
Tammy Weitzman discusses the integral role clinical social workers can play to help patients and their families maintain, or improve, their quality of life.
Transplantation offers a shot a prolonging life or cure, yet it is hard to predict which patients will realize their hopes of life prolongation. Recent research shows that patients who have prepared, cope better and have better outcomes. Dr. Tony Back talks about what preparation means, and what family members and friends can do.
Standing Up For Your Health is a program created by the Aplastic Anemia & MDS International Foundation to help people with bone marrow failure diseases develop the skills necessary to become more effective advocates for their own healthcare and more powerful patients.