Current Studies
2021-2023
Project Title: A Communication-Based Intervention for Early Stage Dementia Patient-Caregiver Dyads to Increase Engagement in Advance Care Planning and Reduce Caregiver Burden
Source of Support: NIH/National Institute on Aging
Grant Type: R21 AG070501
Role: Multiple Principal Investigator
Goal: The goals of this study are to: (1) develop a communication-based intervention for Alzheimer’s Disease and Related Dementias (ADRD) patients and caregivers that includes theoretically grounded communication strategies (e.g., acknowledgment, validation of fears) and distress management techniques (e.g., deep breathing, muscle relaxation); (2) evaluate the feasibility and acceptability of the intervention; and (3) test the preliminary efficacy of the intervention on ADRD patients’ and caregivers’ preparedness for and engagement in ACP, completion of advance directives, and understanding of disease trajectory (primary outcomes) as well as concordance on the patient’s healthcare values, perceived need for ACP, psychological distress, communication quality, and caregiver burden (secondary outcomes).
2020-2025
Project Title: Planning Advance Care Together (PACT) to Improve Engagement in Advance Care Planning among Advanced Cancer Patients
Source of Support: NIH/National Cancer Institute
Grant Type: R37 CA246703
Role: Principal Investigator
Goal: The goals of this study are to pilot test a mobile application (Planning Advance Care Together, PACT) designed to improve advanced cancer patients’ engagement in advance care planning, completion of advance directives, and receipt of goal-concordant care by integrating family members/loved ones (i.e., “caregivers”) and providers into the advance care planning decision-making process.
2018-2021
Project Title: A Communication-Based Intervention for Advanced Cancer Patient-Caregiver Dyads to Increase Engagement in Advance Care Planning and Reduce Caregiver Burden
Source of Support: NIH/National Cancer Institute
Grant Type: R21 CA224874
Role: Multiple Principal Investigator
Goal: The goals of this study are to: (1) develop a communication-based intervention to improve advanced cancer patients’ and caregivers’ prognostic understanding using communication strategies (e.g., acknowledgment, validation of fears) and distress management (e.g., deep breathing, muscle relaxation) techniques; (2) evaluate the feasibility and acceptability of the intervention among advanced cancer patients and their caregivers; and (3) test the preliminary efficacy of the intervention on patients’ and caregivers’ prognostic understanding (primary outcome); completion of DNR order, living will, and health care proxy; psychological distress; communication quality; caregiver burden; and healthcare utilization (secondary outcomes).
2017-2022
Project Title: Culturally Competent Communication Intervention to Improve Latinos’ Engagement in Advance Care Planning
Source of Support: NIH/National Cancer Institute
Grant Type: K07 CA207580
Role: Principal Investigator
Goal: This project aims to develop and pilot test (in a pilot randomized controlled trial) a culturally competent communication intervention designed to improve Latino advanced cancer patients’ engagement in advance care planning.