Clinical Long-Term Follow-Up (LTFU) services at the Seattle Cancer Care Alliance (SCCA) serves patients and their doctors following bone-marrow or stem-cell transplant. Services include telephone consultation with doctors who are caring for transplant recipients after their return home and discussions about post-transplant problems and concerns with patients and family members.
Four nurses and a nurse practitioner who have expertise in LTFU care after transplantation manage telephone inquiries. These individuals meet at regular intervals with a doctor who reviews cases and makes recommendations for management of problems. For some types of problems, local patients may return to the SCCA for specialized care, such as treatment for graft-versus-host disease (GVHD). Patients receiving allogeneic (donor) transplants are also asked to return to the SCCA at the one-year anniversary of their transplant for special testing to review their progress.
When a patient returns home after a transplant, they become part of Fred Hutch's Long-Term Follow-Up Research Program. This is a life-long program of monitoring that continues for as long as the patient is willing to participate.
Patients (and their doctors) are asked to complete a questionnaire at six months after transplant, at one year, and each year thereafter. Collecting data from patients and their doctors' even decades after treatment allows Hutch researchers to learn about the long-term effects of transplant. This is most helpful in determining the best course of preventive care or treatment for current as well as future patients. It is extremely important that patients who are not having post-transplant problems also participate in this program. Participation ensures that our research is more accurate and informative.
Support Group Discussion
Held every Thursday at 11:30 a.m.