The Long-Term Follow-Up (LTFU) outpatient clinic at the Seattle Cancer Care Alliance (SCCA) sees patients following blood or marrow transplant at routine intervals and as needed for post-transplant complications. Patients receiving allogeneic (donor) transplants are asked to return to the SCCA at the one-year anniversary of their transplant for special testing to review their progress and make a plan for future survivorship care. For some types of problems, local patients, and those willing to travel, may return to the SCCA for specialized care, such as treatment for chronic graft-versus-host disease (GVHD). Local doctors and advanced practice providers desiring an in-person clinic visit for their patients may contact 206-667-4415 to discuss referring a patient to the LTFU clinic at the SCCA. The LTFU team works with our specialty providers (Oral Medicine, GI, Gynecology, Pulmonology, etc.) to provide comprehensive post-transplant outpatient care, and multiple appointments may be scheduled to meet the patient’s needs.
The Long-Term Follow-Up (LTFU) Telemedicine team at the Seattle Cancer Care Alliance (SCCA) serves patients and their doctors for life following blood or marrow transplant through telephone consultation. Calls are frequently related to post-transplant complications such as chronic GVHD, infection or relapse or about routine care of the transplant survivor. The service accepts live calls Monday through Friday from 8:30-4:00 PST from the patient or any physician, provider or nurse caring for the patient. Patients and providers may also contact us by email at firstname.lastname@example.org, by fax number 1-800-376-8197, or can leave a voicemail message outside of business hours and the team will respond the following work day. For urgent requests after-hours, providers can call 206-288-7600 and ask to speak with the BMT charge nurse.
Each call will go through a brief intake process with a Patient Care Coordinator. Calls are then returned by an LTFU Telemedicine RN who has expertise in LTFU care after transplantation, after familiarizing themselves with the patient’s transplant history and any recent clinical activity. Most calls are returned within 48 business hours, with priority being placed on more urgent matters. It is likely that the RN will request medical records (clinic notes, labs, current medication list, radiology reports and images, etc.), medical photographs and/or a completed GVHD Assessment and Scoring Form from the caller. Providing these necessary items in a timely fashion will decrease the turnaround time for the inquiry. For inquiries that require physician involvement, the RN will present the case during LTFU Telemedicine rounds, which are held on Tuesdays, Thursdays and Fridays. The LTFU Attending Physician will review available data and make recommendations. Please note that LTFU receives hundreds of pages of medical records from our 6,000+ LTFU patients daily. Medical records that arrive WITHOUT an accompanying phone, email or faxed inquiry will not be reviewed by clinical staff before they are filed in the patient’s LTFU chart. You must call, email or fax your inquiry with the medical records for it to be reviewed by a clinician.
Most patients become part of Fred Hutch's Long-Term Follow-Up Research Program after returning to their primary care provider through consenting to take part in a life-long program of monitoring that continues for as long as the patient is willing to participate.
Patients (and their doctors) are asked to complete a questionnaire annually on their transplant anniversary. Collecting data from patients and their doctors' even decades after treatment allows Hutch researchers to learn about the long-term effects of transplant. This is most helpful in determining the best course of preventive care or treatment for current as well as future patients. It is extremely important that patients who are not having post-transplant problems also participate in this program. Participation ensures that our research is more accurate and informative.
Support Group Discussion
Held every Thursday at 11:30 a.m.