Epidemiology Program

Descriptive Epidemiology and Clinical Course of Myelodysplastic Syndromes (MDS) within the Group Health Cooperative

Principal Investigator: Anneclaire De Roos

We are conducting an epidemiologic study using patient databases from the Group Health Cooperative to estimate basic descriptive statistics for myelodysplastic syndromes (MDS) (e.g., incidence, prevalence, survival) and to track patterns of treatment for the disease. In addition, we will explore predictors of MDS diagnosis among ‘high-risk’ patients with cytopenias. Our analyses will provide insights about the characteristics and natural history of MDS, and will also serve to explore the utility of using electronic health plan databases to identify MDS cases for epidemiologic research.