The STAR Study has a team of consultants with deep connections to the Seattle-area African-American community, including Jacci Thompson-Dodd, founder of WeSpeakLoudly, a resource for breast cancer survivors and health care professionals.
“The components of any survivorship regimen must be clearly articulated, easy to understand and culturally astute. Yet far too often, none of these essential elements are present for African-American women, and poor health outcomes can result,” Thompson-Dodd said. “The STAR Study examines this period of transition from patient to survivor in hopes of closing this gap. … Important insights are being unearthed that will inform a culturally focused navigation program especially for African-American women.”
Another community advocate and study collaborator is Bridgette Hempstead, founder of Cierra Sisters Inc., a Seattle-based African-American breast cancer organization. “I am honored to be part of this historical research that will represent the voices of African-American women and the unique needs that follow their breast cancer experience,” she said.
Other community consultants lending their connections and expertise to the study include Shauna Weatherby, a nurse practitioner in women’s health at Multicare Tacoma Women’s Specialists; behavior-science educator Edree Allen-Agbro, founder of Work Well with Others; and Arthur Walker, community advocate.
The STAR Study focus groups will discuss surviving cancer and receiving support. “The perspective of breast cancer patients and oncology professionals is critical to gaining a comprehensive understanding of this experience and building a sustainable support program”, said study principal investigator Rachel Ceballos, Ph.D.
“Importantly, this study idea was generated during discussions with our community consults who are passionate advocates of the African-American community. Their insights led to the identification of the transition to post-treatment survivorship and long-term effects of cancer as an unaddressed area of need,” said Ceballos, an assistant member of the Public Health Sciences Division at Fred Hutch.
We hope to use the information to develop recommendations for a culturally sensitive patient-navigator program for African-American cancer survivors.
If you would like to participate or to find out more about this study, please contact: Rachel Malen at (206) 667-1409 or click here.
Your participation in our research study and help us better understand the survivor experience. YOUR STORY IS IMPORTANT and together we can help others with cancer!
If you would prefer, you may request information or send questions/ comments to us. Thank you in advance for your consideration and participation.